“We need to be at the table”: Collaboration with lived experts
Canham, S.L., Weldrick, R., Cartledge, A., Chapple, H., Danielsen, C., Kestle, D., Gauthier, M., & Teichman, S. (2024, pre-publication). 鈥淲e need to be at the table鈥�: Collaboration with lived experts. Progress in Community Health Partnerships: Research, Education, and Action (PCHP). Forthcoming. Graphic: Minh Truong |
Abstract
Background
The recognition of lived experience (LE) as an asset has led to increased involvement of individuals most affected by social or medical conditions in research.
Objectives
This paper presents an example of a LE advisory group that co-conceptualized and executed a knowledge mobilization project on aging and homelessness within three Canadian cities (Vancouver, Calgary, and Montreal).
Methods
We established the advisory group, determined the group鈥檚 priorities and objectives, and fostered community engagement through webinars and in-person events.
Lessons Learned
We learned the importance of digital support to enable inclusion of advisors with experiences of homelessness, providing honoraria to for advisors鈥� time and contributions, scheduling meetings on the same day and time each month, and dedicating meeting time for advisors鈥� personal updates and experiences.
Conclusion
This model can be replicated by other research teams studying homelessness, aging, or similar marginalized groups, enhancing the impact of research and knowledge mobilization efforts.
Keywords:
Lived experiences, Community-Based Participatory Research, Homeless Persons, Health Services for the Aged, Aging, Community health partnerships, Process issues
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